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The SECURE-VA registry is a collaborative, worldwide effort. With users reporting cases in real-time, the study team hopes to quickly identify the impact of COVID-19 on patients with all types of vascular anomalies and understand the impact of risk factors such as genotype, prior vascular anomaly complications, or vascular anomaly disease-related medications, on health outcomes.
Denise Adams, MD
Director of the Comprehensive Vascular Anomalies Program
Dr. Adams is director of the Comprehensive Vascular Anomalies Program, a cutting-edge, multidisciplinary program that seeks breakthrough treatments and cures for children, adolescents, and young adults with rare, life-threatening tumors and malformations.
International Society for the Study of Vascular Anomalies (ISSVA): Ilona Frieden, Laurence Boon, Fran Blei
Consortium for the investigation of Vascular Anomalies (CaNVAS): Ionela Iacobas, Eric Sandler, Michael Jeng
European Reference Network for Rare Vascular Diseases (VASCERN) Vascular Anomalies working group (VASCA): Miikka Vikkula