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PKIDS Care Improvement Network Team
Leader
Gregory Tasian, MD, MSCE
Associate Professor of Surgery and Epidemiology (with tenure)
Dr. Tasian and his research team use an epidemiologic framework, including randomized trials and multi-institutional observational studies, to examine the etiology of kidney stone disease and the comparative effectiveness of surgical interventions. He also employs machine learning of complex data to improve diagnosis, risk stratification, and prediction of treatment response for children and adults with benign urologic disease.
Our Team
The Executive Committee is responsible for network and study oversight.
Gregory E. Tasian, MD, MSc, MSCE
Director of PKIDS, Associate Professor
tasiang@chop.edu
Jonathan S. Ellison, MD
Associate Director of PKIDS, Assistant Professor
JEllison@chw.org
William (Bob) DeFoor, MD, MPH
Director of Clinical Research, Professor
Bob.DeFoor@cchmc.org
Caleb P. Nelson, MD, MPH
Co-Director of Kidney Stone Program, Associate Professor
Caleb.Nelson@childrens.harvard.edu
David I. Chu, MD, MSCE
Assistant Professor
DChu@luriechildrens.org
Justin B. Ziemba, MD, MSEd
Assistant Professor
Justin.Ziemba@pennmedicine.upenn.edu
Brian J. Augelli, BS
Director of Operations of PKIDS, Program Manager
augellib@chop.edu
The Patient and Family Partners (PFP) includes patients who had kidney stone surgery and their caregivers who represent the broad spectrum of patients and families served by PKIDS institutions. The PFP reviews and approves the study protocol and identifies and prioritizes the most important aspects of patients’ experiences after kidney stone surgery. They also provide meaningful feedback and dialogue from a patient/participant and/or parent/family member perspective in meetings.
Amy Kratchman, BA
Senior Research Family Consultant
kratchmana@chop.edu
Brian J. Augelli, BS
Director of Operations of PKIDS, Program Manager
augellib@chop.edu
Gregory E. Tasian, MD, MSc, MSCE
Director of PKIDS, Associate Professor
tasiang@chop.edu
Jing B. Karchin, PhD
Clinical Research Coordinator
karchinj@chop.edu
Ruth and Hunter Beck
Patient and Family Partners (Children’s Hospital of Philadelphia)
Laura and Anna Kurth
Patient and Family Partners (Children’s Wisconsin)
Carrie and Tyler Matson
Patient and Family Partners (Children’s Wisconsin)
Rosie Didzik
Patient and Family Partners (Children’s Hospital of Philadelphia)
The Engagement Core will develop and implement the strategic plan to increase patient and caregiver partners and stakeholder engagement in PKIDS. This will rely on building a PKIDS community of practice (COP) of pediatric urologists and other health professionals with an interest in researching, transforming, and disseminating best practices in the surgical care of pediatric kidney stone disease. Achieving this goal will allow us to cultivate a research to community-practitioner partnership to support changes to clinical care and practice.
Amy Kratchman, BA
Senior Research Family Consultant
kratchmana@chop.edu
Brian J. Augelli, BS
Director of Operations of PKIDS, Program Manager
augellib@chop.edu
Gregory E. Tasian, MD, MSc, MSCE
Director of PKIDS, Associate Professor
tasiang@chop.edu
Jing B. Karchin, PhD
Clinical Research Coordinator
karchinj@chop.edu
Antoine Selman Fermin, MD, CCRP
Clinical Research Project Manager
selmanfera@chop.edu
Justin B. Ziemba, MD
Assistant Professor
Justin.Ziemba@pennmedicine.upenn.edu
Michelle R. Denburg, MD, MSCE
Associate Professor
denburgm@chop.edu
Renea M. Sturm, MD
Assistant Professor
RSturm@mednet.ucla.edu
Clinician Council is representative of the specialty mix of providers who care for patients with stones (urology, radiology, nephrology) and the geographic locations, provider ages, and experience levels in PKIDS. The Council will provide strategic and tactical input about the study from frontline clinicians, review PKIDS site practice patterns, and serve as experts in the engagement with clinicians in the community of practice.
The Private Sector Advisory Group includes payers and companies that make equipment used for stone surgery. Industry representatives will use knowledge generated to address the unique needs of and technical considerations for pediatric patients to guide future.
PEDSnet is a large, national community of patients, families, clinicians, scientists, and healthcare system leaders who work together in a distributed learning health system (LHS) that is dedicated to discovering and implementing new ways of providing the best care and ensuring the best outcomes most efficiently. The PKIDS Network arose out of the eight institutions that comprise PEDSnet, responding to an expressed need from patients and their caregivers to better understand the treatment of kidney stones. PKIDS leverages the infrastructure of PEDSnet to efficiently perform studies that will ultimately translate findings into clinical practice through generation and application of knowledge.