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PRISM and CFN for PMD
This study is now recruiting.
Primary mitochondrial diseases (PMD) are a group of energy deficiency disorders that are typically progressive and range in onset and severity. Individuals with PMD experience a variety of clinical symptoms that not only affect their physical health but significantly impact their daily life.
The goal of this study is to find the best way to help adults with PMD deal with the stress of their condition, and to help them be better able to “bounce back,” or be resilient. In order to do this, we are going to test two interventions. The first is called Promoting Resilience in Stress Management (PRISM). The second is called clinical-focused narrative (CFN) intervention.
The study period will last for about one month and will consist of five online visits and a one-time online discussion group.
Who Do I Contact?
If you are interested in participating in the study or want to learn more please contact our study team at mccormicke [at] chop.edu or 267-426-4961.
Eligibility & Criteria
IRB #:
22-020222
Official Title:
Harnessing Resilience in Adults with Primary Mitochondrial Disease: A Pilot Study Investigating the Feasibility of the Promoting Resilience in Stress Management (PRISM) and Clinical-Focused Narrative (CFN) Interventions
Study Phase:
Pilot
Eligible Age Range:
18 - 99 Years
Gender:
All
Study Categories:
Visit Criteria
The study will require five virtual study visits. Each online visit will last for about 30-60 minutes. During these visits, participants will receive one of the two study interventions. Participants will also be sent several surveys to complete. The sixth online visit will be a discussion group that happens a couple months after the intervention is completed.