Early Driving among Adolescents with CHD



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Getting a driver’s license is something that teens-including those with Congenital Heart Disease (CHD)-may look forward to. Although we know a lot about teenage driving and the programs in place to support learning this skill, we know very little about the early driving experiences of teenagers with CHD.

We are looking for teens with CHD who are 15 to 19 years old and have a learner’s permit or valid driver’s license, or interest in obtaining a learner’s permit or driver’s license and their parent/legal guardian. The study will be conducted remotely.

The electronic health record will be reviewed by a member of the study team, and teens and parents/legal guardians will be asked to complete demographic and health assessment surveys. Each teen and parent will participate in separate 45-minute video interviews to talk about what things support driving with a CHD and things that might make it harder to do. The video interview will take place on a video conferencing site using a computer or smartphone.

The total study participation time for each person (teen and parent/legal guardian) is 60 minutes. All teens and parents/legal guardians who participate will be compensated for their effort.

Who Do I Contact?

If you are interested in participating in the study or want to learn more please contact our study team at TeenHealthCHD [at] CHOP.edu or 215-746-8355.

Eligibility & Criteria

IRB #:
Official Title:
Barriers and Facilitators to Early Driving Experiences Among Adolescents with Congenital Heart Disease
Study Phase:
Not Applicable
Eligible Age Range:
15 - 19 Years
Study Categories:


Catherine McDonald

Leigh Ann DiFusco