Why do children with cancer need support?
- While children with cancer are resilient, the treatments, procedures and changes to day-to-day life they experience can be overwhelming.
- To deal with the challenges that children with cancer and their families face, the Institute of Medicine recommends that clinicians and hospitals provide supportive care and tools to help families address pediatric cancer concerns.
- The Cellie Coping Kit was developed to help families deal with challenging aspects of diagnosis and treatment.
What does the Cellie Coping Kit for Cancer include?
- Cellie toy
- A book for caregivers
- 30 coping cards for children and a Cellie card box
- A Cellie back pack
- Available in English and Spanish
- Click here for a handout describing the Cellie Kit
How did children with cancer help us develop the Cellie Coping Kit for Cancer?
How is the Children's Hospital of Philadelphia using the Cellie Coping Kit for Cancer?
- At CHOP, every patient with cancer is provided the Cellie Kit for free. Click here for more information on on how CHOP uses the Cellie Cancer Coping Kit.
What research has been completed with the Cellie Coping Kit for Cancer?
We have completed two studies evaluating the Cellie Coping Kit for Cancer. This research suggested that families find the kit helpful, engaging, and educational. Children and parent report learning new skills about how to deal with cancer and treatment-related stressors.
Cellie Cancer Research References
- Marsac, M.L., Hildenbrand, A.K., Kohser, K., Jackson, L., Barakat, L., Vinsel, A., & Alderfer, M.A. Promoting adjustment to pediatric cancer: Initial development of an innovative, developmentally sensitive tool. In Kassam-Adams (Chair), Traumatic stress, coping, and health outcomes in children facing medical events. International Society for Traumatic Stress Studies Annual Meeting, Baltimore, Maryland, November 2011.
- Marsac, M.L., Hildenbrand, A.K., Jackson, L., Barakat, L., & Alderfer, M.A. The Cellie Cancer Coping Kit: Acceptability, Feasibility, and Initial Outcomes. Midwest Regional Conference in Pediatric Psychology, Milwaukee, Wisconsin, April 2012.
- Marsac, M.L., Hildenbrand, A.K., Klingbeil, O., Jones, A., Mehta, N., Alderfer, M.A. & Barakat, L.P. Adapting the Cellie Coping Kit for children with sickle cell disease. Poster at the Annual Convention of the American Psychology Association, Honolulu, Hawaii, August 2013.
- Marsac, M., Klingbeil, O. Hildenbrand, A., Barakat, L., Alderfer, M., Kassam-Adams, N. Development and dissemination of the Cellie Cancer Coping Kit. Presentation at the Association of Pediatric Hematology and Oncology Nurses Local Chapter Meeting, Philadelphia, PA, February 2014.
- Marsac, M.L., Barakat, L.P., Alderfer, M.A., Kassam-Adams, N., Klingbeil, O., & Hildenbrand, A.K. Development and dissemination of the Cellie Cancer Coping Kit at the American Psychosocial Oncology Society Annual Conference, Tampa, Florida, February 2014.
- Marsac, M.L., Barakat, L.P., Kohser, K.L., Kassam-Adams, N., Alderfer, M.A. Supporting children through cancer: Development and dissemination of the Cellie Cancer Coping Kit. Poster presented at the Association of Pediatric Oncology Social Workers Annual Conference, Philadelphia, Pennsylvania, March 2014.
- Marsac, M.L., Hildenbrand, A., Clawson, K., Jackson, L, Kohser, K., Barakat, L, Kassam-Adams, N., Aplenc, R., Vinsel, A, Alderfer, M.A. Preliminary data on acceptability and feasibility of the Cellie Cancer Coping Kit. Supportive Care in Cancer, 20 (12): 3315-3324, 2012. doi: 10.1007/s00520-012-1475-y
Tell us what you think!
- We love to hear feedback about how you use the Kit or new ideas that you have!
- Complete our survey at https://tiu.research.chop.edu/redcap/redcap/surveys/?s=RFTcW3 or contact us at firstname.lastname@example.org.
- You can also follow us on facebook: https://www.facebook.com/celliecopingkit