Synovial Sarcoma Registry / Biospecimen Repository FAQs

No. You do not need to travel to Philadelphia. This study is open to anyone treated in the United States.

No. If you have ever been diagnosed with synovial sarcoma, you can participate.

No. There are no costs to participate.

Every 6-12 months, we will reach out to see if there are any updates. We will do this for up to 10 years. We also send out a quarterly study newsletter. You can opt out of receiving this newsletter at any time.

There will be no direct benefit to you from participating in this study. We hope that the information and samples we collect will help researchers and physicians better understand Synovial Sarcoma and other rare diseases. Genetic testing results that could be important for your clinical care will be shared with you or your treating physician. We will not share other results with you.

Yes, the registration process is a little different, but if this is something they would have wanted to be a part of, reach out to us.

You can contact the study team at any time at [email protected] or (267) 827-8145.