Dr. Walter's research in the pediatric cardiac intensive care unit includes the customization of an interprofessional team and family-based intervention to improve communication about goals of care, and teamwork and evaluation of the intervention. Knowledge gained from this research will guide future interventions to improve outcomes for pediatric patients with advanced heart disease and their families.
Dr. Lisanti's research focuses on understanding the influence of individualized family-centered developmental care (IFDC) on infants with congenital heart disease and their families. She is investigating the biobehavioral mechanisms that influence parent stress and mental health symptoms, with the ultimate goal of discovering biological and psychosocial links between parent mental health and child developmental outcomes.
Amy Kratchman has been working with clinicians and researchers since 2008 as a family representative. She is the mother of three children with special healthcare needs. As a family consultant at Children's Hospital of Philadelphia, Kratchman co-leads numerous family-centered care initiatives.
Making medical decisions can be overwhelming when families must figure out the "best choices" for their child who may have special healthcare needs or developmental disabilities. Some families may rely on their clinicians to make these important decisions for them, in a paternalistic "father knows best" way.
As we approach the end of 2016, for good or ill, this time of year lends itself to reflection. To look back over these 12 months in research at Children's Hospital of Philadelphia, we've decided to pick 12 of the most popular stories we've brought you in the past year. While any year has its hardships and its triumphs, we're