Dr. Feudtner's research strives to advance the well-being of pediatric patients with complex chronic conditions and serious, often rare, illnesses, and to promote the well-being of their families. Along with his colleagues, Dr. Feudtner is conducting studies focusing on pediatric palliative care, complex care, the impact on families of pediatric serious illness, and pediatric medical ethics.
Dr. Walter's research in the pediatric cardiac intensive care unit includes the customization of an interprofessional team and family-based intervention to improve communication about goals of care, and teamwork and evaluation of the intervention. Knowledge gained from this research will guide future interventions to improve outcomes for pediatric patients with advanced heart disease and their families.
Dr. Joffe's research addresses three areas. First, he studies leadership in biomedical science, including governance within learning healthcare systems and the role of the principal investigator in multicenter trials. Second, he studies the ethical questions raised by genomic sequencing in medicine and science. Finally, he studies the ethics of human subjects research, including informed consent and clinical research design.
Dr. Miller conducts developmentally informed behavioral research to examine the impact of parent-youth communication and decision making on health-related behaviors and outcomes. She aims to conduct research that facilitates youth involvement and empowerment in health-related decision making and enhances parent-youth-provider relationships.
Dr. Kenyon's research focuses on integrating care systems and reducing outcome disparities for children with asthma. His recent work focuses on developing novel interventions to enhance asthma controller medication use in the highest risk children by leveraging mobile health technology and incentives oriented to the child.