The Beckwith-Wiedemann syndrome (BWS) study team is dedicated to providing resources to educate families and physicians about BWS, including a coloring book.
The Beckwith-Wiedemann Syndrome Program of Excellence (BWS POE), steered by a diverse committee of researchers, clinicians, and patient families, is a comprehensive collaboration of clinical and basic science research focusing on the investigation of short-term and long-term effects of Beckwith-Wiedemann Syndrome on children and adults.
The BWS Registry was developed to improve our understanding and management of Beckwith-Wiedemann syndrome (BWS), hemihypertrophy/lateralized overgrowth, and other disorders.
