PEDSnet Research Prioritization Strategy

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PEDSnet and DBPNet seek youth (13-24), parents, and clinicians/scientists for the Intellectual and Developmental Disabilities (IDD) Research Prioritization Study. The goal is to develop a prioritized list of research questions that will immediately impact patient health outcomes, focusing on children with IDD.
 
Participants will answer open-ended questions on Viva Engage, a Microsoft platform, to share their thoughts and opinions. The study is entirely online, and parents and youth will be compensated for their time. To participate or learn more, complete our eligibility screener.

Who Do I Contact?

If you are interested in participating in the study or want to learn more please contact our study team at pedsnetresearch [at] chop.edu or 856-357-3490.

Eligibility & Criteria

IRB #:
16-012878
Official Title:
PEDSnet Stakeholder-informed Patient-Centered Research Prioritization: Standard Process, Procedures, and Tools
Study Phase:
Not Applicable
Eligible Age Range:
13 - 100 Years
Gender:
All
Study Categories:
Downloadable Resources:

Recruitment Flier - Clinicians

Recruitment Flier - Youth 18-24 yrs

Recruitment Flier - Youth and Parents

Leaders
L. Charles Bailey

L. Charles Bailey, MD, PhD

Christopher B. Forrest Headshot

Christopher B. Forrest, MD, PhD