Pediatric IBD Fatigue Index, and the Pediatric IBD Disability Index Study

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Kids with IBD (inflammatory bowel disease) often struggle with tiredness and difficulty doing everyday activities, which can make life harder, but there aren't good tools to measure these problems in children. This study aims to create special tools to measure fatigue and disability in kids aged 2-18. Researchers will talk to kids and their parents to find out what issues matter most and use this information, along with medical records, to design the tools. The goal is to help doctors track these problems better and improve care for children with IBD. This study is being done in collaboration with the Shaare Zedek Medical Center. Participants will be compensated for their time and effort, upon completion of the interview.

Who Do I Contact?

If you are interested in participating in the study or want to learn more please contact our study team at ibdresearch [at] chop.edu or 445-942-0259.

Eligibility & Criteria

IRB #:
23-021607
Official Title:
Development, Validation and Evaluation of the Pediatric IBD Fatigue Index (PIFI), and the Pediatric IBD Disability Index (PIDI) Including Patient Reported and Observer Reported Versions (PRO and obsRO)
Study Phase:
Phase I
Eligible Age Range:
2 - 18 Years
Gender:
All
Study Categories:

Visit Criteria

Visit 1:

  • Attend a 30-45-minute audio and video-recorded semi-structured interview
  • Review medications and medical history
Leaders
Robert N. Baldassano

Robert N. Baldassano, MD

Ronen Stein

Ronen Stein, MD