Pediatric Chronic Illness P3 Study

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We are trying to learn more about the ways in which adolescents (12-17 years) are involved in decision making related to their chronic condition. We are hoping to partner with families who are planning to attend or recently attended a visit in the Comprehensive Sickle Cell Center, Diabetes Center for Children, Center for Inflammatory Bowel Disease, or the Division of Rheumatology at CHOP.

If you and your child are able to help us, you will each be asked to complete a questionnaire about your experiences during a recent clinic visit. Additionally, a random selection of parents and teens will be asked to complete an interview with our team. All participants will be compensated for their participation in this study.

It is essential that we speak to families before or immediately following their scheduled visit at CHOP.

Who Do I Contact?

If you are interested in participating in the study or want to learn more please contact our study team at P3DecisionStudy [at] chop.edu or 215-578-9271.

Eligibility & Criteria

IRB #:
21-018733
Official Title:
Adolescents’ Involvement in Decision Making During Specialty Care Visits for Pediatric Chronic Illness
Study Phase:
Not Applicable
Eligible Age Range:
12 - 17 Years
Gender:
All
Study Categories:

Visit Criteria

Enrollment visit (in-person or by phone)

  • One-time electronic parent survey
  • One-time electronic teen survey
  • A random selection of parents and teens will be asked to complete an interview with our team on Microsoft Team
Leader
Victoria A. Miller

Victoria A. Miller, PhD