Larsen Syndrome: Risk factors for Thoracic Insufficiency Syndrome

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This research study is looking at risk factors for developing Thoracic Insufficiency in children with Larsen's Syndrome. We are looking for children ages 6-18 who have been diagnosed with Larsen's Syndrome. Participants will be asked to undergo a physical exam, X-Rays, an MRI, and a Pulmonary Function Test. If interested, please contact Nirupa Galagedera (galagedern@chop.edu or 215-590-1943) or Carina Lott (lottc@chop.edu or 267-426-0287).

Eligibility & Criteria

IRB #:
16-012891
Official Title:
Larsen Syndrome: Risk Factors for Thoracic Insufficiency Syndrome
Study Phase:
Not Applicable
Eligible Age Range:
6 - 18 Years
Gender:
All
Study Categories: