Feudtner Laboratory Publications



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Below is a list of selected publications from the Feudtner Lab. For a full list, please visit PubMed.

Madrigal VN, Hill DL, Shults J, Feudtner C. Trust in Physicians, Anxiety and Depression, and Decision-Making Preferences among Parents of Children with Serious Illness. J Palliat Med. 2021 Sep; Epub ahead of print. PMID: 34516933
Boyden JY, Hill DL, Nye RT, Bona K, Johnston EE, Hinds P, Friebert S, Kang TI, Hays R, Hall M, Wolfe J, Feudtner C; PPCRN SHARE Project Group. Pediatric palliative care parents' distress, financial difficulty, and child symptoms. J Pain Symptom Manage. 2021 Aug; S0885-3924(21)00492-9. Epub ahead of print. PMID: 34425212
Feudtner C, Nye R, Hill DL, Hall M, Hinds P, Johnston EE, Friebert S, Hays R, Kang TI, Wolfe J. Polysymptomatology in Pediatric Patients Receiving Palliative Care Based on Parent-Reported Data. JAMA Netw Open. 2021 Aug; 4(8): e2119730. PubMed PMID: 34351400
Walter JK, Hill DL, Schall TE, Szymczak JE, Parikh S, DiDomenico C, Carroll KW, Nye RT, Feudtner C. An Interprofessional Team-Based Intervention to Address Barriers to Initiating Palliative Care in Pediatric Oncology: A Multiple-Method Evaluation of Feasibility, Acceptability, and Impact. J Pain Symptom Manage. 2021 Jun; S0885-3924(21): 00385-7. PubMed PMID: 34153461
Boyden JY, Feudtner C, Deatrick JA, Widger K, LaRagione G, Lord B, Ersek M. Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach. BMC Palliat Care. 2021 Jan; 20(1): 17. PubMed PMID 33446192
Boyden JY, Ersek M, Deatrick JA, Widger K, LaRagione G, Lord B, Feudtner C. What Do Parents Value Regarding Pediatric Palliative and Hospice Care in the Home Setting?. J Pain Symptom Manage. 2021 Jan; 61(1): 12-23. PubMed PMID: 32745574
Boyden JY, Hill DL, Carroll KW, Morrison WE, Miller VA, Feudtner C. The Association of Perceived Social Support with Anxiety over Time in Parents of Children with Serious Illnesses. J Palliat Med. 2020 Apr; 23(4): 527-534. PubMed PMID: 31697175
Trowbridge A, Bamat T, Griffis H, McConathey E, Feudtner C, Walter JK. Pediatric Resident Experience Caring for Children at the End of Life in a Children's Hospital. Acad Pediatr. 2020 Jan; 20(1): 81-88. PubMed PMID: 31376579
Walter JK, Arnold RM, Curley MAQ, Feudtner C. Teamwork When Conducting Family Meetings: Concepts, Terminology, and the Importance of Team-Team Practices. J Pain Symptom Manage. 2019 Aug; 58(2): 336-343. PubMed PMID: 31051202
Walter JK, Schall TE, DeWitt AG, Faerber J, Griffis H, Galligan M, Miller V, Arnold RM, Feudtner C. Interprofessional Team Member Communication Patterns, Teamwork, and Collaboration in Pre-family Meeting Huddles in a Pediatric Cardiac Intensive Care Unit. J Pain Symptom Manage. 2019 Jul; 8(1): 11-18. PubMed PMID: 31004773
Hill, D.L., Walter, J.K., Szymczak, J.E., DiDomenico, C., Parikh, S., Feudtner. C. Seven Types of Uncertainty when Clinicians Care for Pediatric Patients with Advanced Cancer. J Pain Symptom Manage. 2019 Jan; doi: 10.1016/j.jpainsymman.2019.08.010
Hill, D. L., Faerber, J. A., Li, Y., Miller, V. A., Carroll, K. W., Morrison, W., Hinds, P.S., Feudtner, C. Changes Over Time in Good-Parent Beliefs Among Parents of Children With Serious Illness: A Two-Year Cohort Study. J Pain Symptom Manage. 2019 Jan; 58(2): 190-197. doi:10.1016/j.jpainsymman.2019.04.018
Kenyon CC, Gruschow SM, Quarshie WO, Griffis H, Leach MC, Zorc JJ, Bryant-Stephens TC, Miller VA, Feudtner C. Controller adherence following hospital discharge in high risk children: A pilot randomized trial of text message reminders. J Asthma. 2019 Jan; 56(1): 95-103. PubMed PMID: 29437489
Hill DL, Walter JK, Casas JA, DiDomenico C, Szymczak JE, Feudtner C. The codesign of an interdisciplinary team-based intervention regarding initiating palliative care in pediatric oncology. Support Care Cancer. 2018 Sep; 26(9):3249-3256. PMID: 29627863
Szymczak JE, Schall T, Hill DL, Walter JK, Parikh S, DiDomenico C, Feudtner C. Pediatric Oncology Providers' Perceptions of a Palliative Care Service: The Influence of Emotional Esteem and Emotional Labor. J Pain Symptom Manage. 2018 May; 55(5): 1260-1268. PubMed PMID: 29425881
Faerber J, Zhong W, Dai D, Baehr A, Maxwell LG, Kraemer FW, Feudtner C. Comparative Safety of Morphine Delivered via Intravenous Route vs. Patient-Controlled Analgesia Device for Pediatric Inpatients. J Pain Symptom Manage. 2017 May; 53(5): 842-850. PubMed PMID: 28062336
Hill DL, Nathanson PG, Fenderson RM, Carroll KW, Feudtner C. Parental Concordance Regarding Problems and Hopes for Seriously Ill Children: A Two-Year Cohort Study. J Pain Symptom Manage. 2017 May; 53(5): 911-918. PubMed PMID: 28062346
Miller VA, Feudtner C, Jawad AF. Children's Decision-Making Involvement About Research Participation: Associations With Perceived Fairness and Self-Efficacy. J Empir Res Hum Res Ethics. 2017 Apr; 12(2): 87-96. PubMed PMID: 28421884
Doupnik SK, Hill D, Palakshappa D, Worsley D, Bae H, Shaik A, Qiu MK, Marsac M, Feudtner C. Parent Coping Support Interventions During Acute Pediatric Hospitalizations: A Meta-Analysis. Pediatrics. 2017 Jan; 140(3). pii: e20164171. PMID: 28818837
Miller VA, Feudtner C. Parent and Child Perceptions of the Benefits of Research Participation. IRB. 2016 Jul; 38(4): 1-7. PubMed PMID: 29442473


Feudtner, C. Bittersweet: Diabetes, Insulin, and the Transformation of Illness. 2003: The University of North Carolina Press; Chapel Hill and London.