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Public Meeting: FDA Rare Disease Day 2023



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Feb 27, 2023 ‐ 9:00 am
End Date/Time-NEW
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The FDA will host Rare Disease Day 2023 conference, a virtual public meeting, to observe Rare Disease Week. This year's theme is "Intersections with Rare Diseases - A patient-focused event."

Denise Adams, MD, Director of the Comprehensive Vascular Anomalies Program at CHOP, will take part in a panel during the event, along with other Penn faculty and medical students. The panel is called "Spotlighting the Zebras: A Role for Medical Students in Shaping Rare Disease Care."

Participants in Rare Disease Day will have the unique opportunity to:

  • Hear directly from the FDA on initiatives to advance medical product development for rare diseases.
  • Engage with the FDA to provide your perspectives as a patient, caregiver or family member.
  • Understand considerations and challenges associated with clinical trials in small populations.
  • Hear from medical students on rare disease education for medical professionals.