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My Data, Myself: Science, Law, & Ethics of Genetic Databases

Mar 6, 2020 ‐ 8:00 am
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Drexel University Kline School of Law
1200 Chestnut St.
Philadelphia, PA

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My Data, Myself: Science, Law, & Ethics of Genetic Databases

Panel with speakers from Children's Hospital of Philadelphia, Drexel University, Johns Hopkins, 23andMe, NIH, and Perelman School Medicine. Panelists will explore the interrelation between genetic science, privacy, law, and ethics in the compilation and use of genetic databases. Top experts from across key disciplines will offer perspectives on the future of this exciting but perilous new frontier in technology.

Date: March 6, 2020

Time: 8:00 AM - 1:15 PM

Location: Drexel University Kline School of Law, 1200 Chestnut St, Philadelphia, PA

Speakers

Joann Bodurtha, MD, MPH
Professor of Genetic Medicine, The Johns Hopkins University School of Medicine

Holly Fernandez Lynch, JD, MBe
John Russell Dickson, MD Presidential Assistant Professor of Medical Ethics, Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania

Hakon Hakonarson, MD, PhD
Director of the Center for Applied Genomics, Children’s Hospital of Philadelphia

Sierra Luther, JD
Contracts Associate, 23andMe

Reed Pyeritz, MD, PhD
William Smilow Professor, Perelman School of Medicine, University of Pennsylvania

Mark Rothstein, JD
Herbert F. Boehl Chair of Law and Medicine, Founding Director of the Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine and Brandeis School of Law

Sheri Schully, PhD
Deputy Chief Medical and Scientific Officer of the All of Us Research Program, National Institutes of Health

Agenda

  • 8:00 - 8:30 am Registration and breakfast
  • 8:30 - 8:35 am Welcome
  • 8:35- 9:35 am Opening keynote presentation: Genetic science and frontiers of medical innovation: Hakon Hakonarson, MD, PhD
  • 9:35 - 9:45 am Break
  • 9:45 - 10:45 am Panel on genetic science, clinical care and research: Joann Bodurtha, MD, MPH, Reed Pyeritz, MD, PhD, and Sheri Schully, PhD
  • 10:45 - 11:00 am Break
  • 11:00 am -12:00 pm Panel on law, privacy and ethics: Sierra Luther, JD, and Holly Fernandez Lynch, JD, MBe
  • 12:00 - 12:15 pm Break to collect box lunches
  • 12:15 - 1:15 pm Closing keynote presentation: Law, privacy and medical innovation: Mark Rothstein, JD
Add to Calendar 2020-03-06 08:00:00 2020-03-06 13:15:00 My Data, Myself: Science, Law, & Ethics of Genetic Databases My Data, Myself: Science, Law, & Ethics of Genetic Databases Panel with speakers from Children's Hospital of Philadelphia, Drexel University, Johns Hopkins, 23andMe, NIH, and Perelman School Medicine. Panelists will explore the interrelation between genetic science, privacy, law, and ethics in the compilation and use of genetic databases. Top experts from across key disciplines will offer perspectives on the future of this exciting but perilous new frontier in technology. Date: March 6, 2020 Time: 8:00 AM - 1:15 PM Location: Drexel University Kline School of Law, 1200 Chestnut St, Philadelphia, PA Speakers Joann Bodurtha, MD, MPH Professor of Genetic Medicine, The Johns Hopkins University School of Medicine Holly Fernandez Lynch, JD, MBe John Russell Dickson, MD Presidential Assistant Professor of Medical Ethics, Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania Hakon Hakonarson, MD, PhD Director of the Center for Applied Genomics, Children’s Hospital of Philadelphia Sierra Luther, JD Contracts Associate, 23andMe Reed Pyeritz, MD, PhD William Smilow Professor, Perelman School of Medicine, University of Pennsylvania Mark Rothstein, JD Herbert F. Boehl Chair of Law and Medicine, Founding Director of the Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine and Brandeis School of Law Sheri Schully, PhD Deputy Chief Medical and Scientific Officer of the All of Us Research Program, National Institutes of Health Agenda 8:00 - 8:30 am Registration and breakfast 8:30 - 8:35 am Welcome 8:35- 9:35 am Opening keynote presentation: Genetic science and frontiers of medical innovation: Hakon Hakonarson, MD, PhD 9:35 - 9:45 am Break 9:45 - 10:45 am Panel on genetic science, clinical care and research: Joann Bodurtha, MD, MPH, Reed Pyeritz, MD, PhD, and Sheri Schully, PhD 10:45 - 11:00 am Break 11:00 am -12:00 pm Panel on law, privacy and ethics: Sierra Luther, JD, and Holly Fernandez Lynch, JD, MBe 12:00 - 12:15 pm Break to collect box lunches 12:15 - 1:15 pm Closing keynote presentation: Law, privacy and medical innovation: Mark Rothstein, JD - Office of Faculty Development rif24@drexel.edu America/New_York public