EthicsLab Research Affinity Group News & Announcements

In a retrospective review at a large, quaternary academic center of all outpatient ethics consults in a six-year period, the study authors aimed to describe the distinctive nature of ethics consultation in the ambulatory setting.

CHOP and Penn researchers conducted a study to examine the associations of youth decision-making involvement (DMI) regarding growth hormone (GH) treatment with youth and parent characteristics. The researchers hypothesized that youth DMI regarding GH might be beneficial. The…

Researchers from CHOP and the University of Pennsylvania collaborated on a study that identified specific ways neonatologists use genetic information in their clinical decision making.

Photo-narratives are a promising strategy to share perspectives about patient well-being by individualizing and personalizing the patients for clinicians. This study describes the iterative refinement and lessons learned in adapting a photo-narrative intervention for children…

A CHOP-led retrospective study characterized how uncertainty is communicated to families by cardiac critical teams and how families respond. Based on the results, the researchers suggest how to effectively communicate uncertainty to patient families. Their findings appear in the…

Learn more about the findings presented in the Ethics Consultation in U.S. Pediatric Hospitals: Adherence to National Practice Standards publication.