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Down Syndrome Research Group Research Overview
We are inviting teens and young adults with Down syndrome (DS) and their care givers to participate in a study that aims to improve the way we explain research studies to individuals with DS. Our goal is to create tools to help explain what it means to be in a research study and to get feedback on how we can improve these tools.
This study is complete and no longer needs participants.
Kids and teens with Down syndrome are more likely to become overweight. Teenagers with DS often have more body fat than other people their age and might have higher chances of getting health issues like diabetes and heart problems. This study looked at ways to measure body fat and risk for these health problems in kids and teens with Down syndrome compared to other healthy people. The goal was to help doctors find better ways to check for and stop these health problems in kids and teens with Down syndrome.
Papers About This Research
- Cardiometabolic Risk and Body Composition in Youth with Down Syndrome
- Physical Activity in Youth with Down Syndrome and Its Relationship with Adiposity
- Caregiver-Reported Quality of Life in Youth with Down Syndrome
- Cross-Sectional Study of Arterial Stiffness in Adolescents with Down Syndrome
- Relationships of Body Composition to Cardiac Structure and Function in Adolescents with Down Syndrome are Different than in Adolescents Without Down Syndrome
This study is complete and no longer needs participants.
Sleep problems are common in people with Down syndrome (DS). A special sleep test in a hospital is usually needed to find these problems, but it can cost a lot of money and be hard to get. This makes it hard for doctors to study how sleep problems affect people with Down syndrome. There is a home test for sleep problems that is sometimes used for adults, but we don’t know enough about how this home test works for people with Down syndrome. Showing how useful the home test is for people with Down syndrome will hopefully help to improve sleep care and check-ups.
Papers About This Research
Supported by the NIH, the Down Syndrome Research Group is embarking upon a comprehensive study of Down syndrome, engaging the community along the way.