Cellie Coping Kit
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Cellie Coping Kit Overview

Challenges in dealing with illness and injury can be overwhelming. The Cellie Coping Kit was developed to help children and their families manage these challenges.

The Cellie Coping Kit includes a stuffed toy named Cellie, coping cards for kids, and a book for caregivers. Families will find over 100 tips for dealing with numerous illness or injury-related stressors, such as medical procedures, hospital visits and feelings of fear and uncertainty.

How to use Cellie Kit

Children can search the deck of cards to find ideas for making hospital stays, procedures, school and other challenges easier. Parents or other caregivers can look in the book to help your child use the Cellie Kit strategies.

For an example of how to use the Cellie Kit, click here

What do families say about the Cellie Kit? Key Research Findings

Children and their parents find the Cellie Kit engaging and helpful.

  • "I like Cellie, he’s great." -Child with cancer
  • "The way [the Cellie Coping Kit is] set up is that it’s actually really self-explanatory…We could comprehend it." -Parent of child with cancer
  • "I hug him tight. I sleep with him." -Child with cancer
  • "I play with [Cellie] every day. I get all my favorite dolls and [Cellie] and we play school."-Child with sickle cell disease

The Kit helped families learn new skills

  • "The pain tips help me … and the pain thermometer, the faces, and the belly breathing card, that helped me a lot." -Child with sickle cell disease
  • "I used the cards, just like to see the things I have, what I can do to calm down," -Child with cancer
  • "She’s become more aware about [her illness] by reading the cards and by asking a lot of questions. Some of the things on the cards she didn’t understand [before] so she has more of an education now." -Parent of child with sickle cell disease

The Kit helps improve communication between parents and children

  • "I like [the Cellie Coping Kit] because it gives a basic definition of the disease and then it gives you details, things to do to help prevent pain crisis, like drinking plenty of fluids, and then it also tells you when pain crises do arise, how to deal with them." -Parent of child with sickle cell disease
  • "I use the cards maybe like twice a week with [my son]. We read [them] to each other. I’ve tried to explain to him the stuff that he can go through." -Parent of child with cancer

Cellie Research References

Presentations

  • Marsac, M.L., Hildenbrand, A.K., Kohser, K., Jackson, L., Barakat, L., Vinsel, A., & Alderfer, M.A. Promoting adjustment to pediatric cancer: Initial development of an innovative, developmentally sensitive tool. In Kassam-Adams (Chair), Traumatic stress, coping, and health outcomes in children facing medical events. International Society for Traumatic Stress Studies Annual Meeting, Baltimore, Maryland, November 2011.
  • Marsac, M.L., Hildenbrand, A.K., Jackson, L., Barakat, L., & Alderfer, M.A. The Cellie Cancer Coping Kit: Acceptability, Feasibility, and Initial Outcomes. Midwest Regional Conference in Pediatric Psychology, Milwaukee, Wisconsin, April 2012.
  • Marsac, M.L., Hildenbrand, A.K., Klingbeil, O., Jones, A., Mehta, N., Alderfer, M.A. & Barakat, L.P. Adapting the Cellie Coping Kit for children with sickle cell disease. Poster at the Annual Convention of the American Psychology Association, Honolulu, Hawaii, August 2013.
  • Marsac, M., Klingbeil, O. Hildenbrand, A., Barakat, L., Alderfer, M., Kassam-Adams, N. Development and dissemination of the Cellie Cancer Coping Kit. Presentation at the Association of Pediatric Hematology and Oncology Nurses Local Chapter Meeting, Philadelphia, PA, February 2014.
  • Marsac, M.L., Barakat, L.P., Alderfer, M.A., Kassam-Adams, N., Klingbeil, O., & Hildenbrand, A.K. Development and dissemination of the Cellie Cancer Coping Kit at the American Psychosocial Oncology Society Annual Conference, Tampa, Florida, February 2014.
  • Marsac, M.L., Barakat, L.P., Kohser, K.L., Kassam-Adams, N., Alderfer, M.A. Supporting children through cancer: Development and dissemination of the Cellie Cancer Coping Kit. Poster presented at the Association of Pediatric Oncology Social Workers Annual Conference, Philadelphia, Pennsylvania, March 2014.
  • Klingbeil, O., Hildenbrand, A.K., Alderfer, M.A., Kassam-Adams, N., Smith-Whitley, K., Barakat, L.P., Marsac, M.L. Coping Influence of the Cellie Coping Kit for Sickle Cell Disease. Poster presented at the Society of Pediatric Psychology Annual Conference, Philadelphia, PA, March 2014.

Hildenbrand, A.K., Klingbeil, O., Alderfer, M.A., Smith-Whitley, K., Barakat, L.P., Marsac, M.L. A novel coping tool for children with cancer and sickle cell disease: The Cellie Coping Kit. Poster presented at the 35th Annual Meeting & Scientific Sessions of the Society of Behavioral Medicine, Philadelphia, PA, April 2014.

Publications

  • Marsac, M.L., Hildenbrand, A., Clawson, K., Jackson, L, Kohser, K., Barakat, L, Kassam-Adams, N., Aplenc, R., Vinsel, A, Alderfer, M.A. Preliminary data on acceptability and feasibility of the Cellie Cancer Coping Kit. Supportive Care in Cancer, 20 (12): 3315-3324, 2012. doi: 10.1007/s00520-012-1475-y
  • Marsac, M.L., Klingbeil, O.G., Hildenbrand, A.K., Alderfer, M.A., Kassam-Adams, N., Smith-Whitley, K., & Barakat, L.P. The Cellie Coping Kit for Sickle Cell Disease: Initial acceptability and feasibility. Clinical Practice in Pediatric Psychology, in press.

Tell us what you think!

We love to hear feedback about how you use the Kit or new ideas that you have!

Complete our survey at https://tiu.research.chop.edu/redcap/redcap/surveys/?s=RFTcW3 or contact us at cellie@email.chop.edu.

You can also follow us on facebook: https://www.facebook.com/celliecopingkit

Questions?

Vocabulary: