New Award to CHOP Research Focuses on Shared Decision Making in ADHD

10/16/2009

Alex Fiks, MD, MSCE, an urban primary care pediatrician who studies health information technology as a faculty member in the Center for Biomedical Informatics (CBMi) at Children’s Hospital, was recently awarded a 5-year K23 grant from the Eunice Kennedy Shriver National Institute of Child Health and Human Development.

Dr. Fiks will study shared decision making, a process in which families and clinicians exchange information, express treatment preferences, and jointly decide upon a treatment plan. The K award will focus on Attention-Deficit/Hyperactivity Disorder (ADHD), an ideal case for shared decision making with multiple treatment options, strong cultural and personal beliefs among families of those affected, and historically poor adherence to treatment.

The principal hypothesis of the project is that the “use of an instrument to capture families’ ADHD treatment preferences and goals within a health information technology-based system will facilitate shared decision making and improve adherence to and outcomes from treatment.”

The outcomes of the project will be used to advance shared decision- making research in ADHD as well as other conditions. This project will provide a foundation for the large- scale study of health information technology enabled shared decision making.

CBMi is an innovative, interdisciplinary and academically focused group that facilitates the utilization of biomedical information. CBMi's mission is to provide the expertise and infrastructure needed to maximize the value of information relevant to all biomedical research, education and clinical activities occurring at Children's Hospital. This endeavor blends the disciplines of bioinformatics and clinical information, which themselves require excellence in and integration of various knowledge domains, including biology, medicine, statistics, mathematics, linguistics and computer science.

For more information about CBMi, please visit http://www.research.chop.edu/cbmi/.